Recursos

Palliative and End-of-Life Care in Myelodysplastic Syndromes.

Related Articles Palliative and End-of-Life Care in Myelodysplastic Syndromes. Curr Hematol Malig Rep. 2016 Dec;11(6):434-440 Authors: Nickolich M, El-Jawahri A, LeBlanc TW Abstract A growing literature demonstrates that MDS is associated with significant impairments in overall quality of life. Given the poor prognosis for many patients with MDS, and the considerable morbidities associated with this disease, there is a critical need to address palliative and end-of-life care needs in this population. However, palliative and end-of-life care issues are under-represented in the MDS literature. In this article, we highlight a growing body of literature that demonstrates unmet palliative and end-of-life care…
Origen: Palliative and End-of-Life Care in Myelodysplastic Syndromes. – PubMed

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Prevalence and Nature of Spiritual Distress Among Palliative Care Patients in India.

Related Articles Prevalence and Nature of Spiritual Distress Among Palliative Care Patients in India. J Relig Health. 2017 Apr;56(2):530-544 Authors: Gielen J, Bhatnagar S, Chaturvedi SK Abstract In palliative care research, little attention has been paid to the empirical study of spirituality in patients in non-Western countries. This study describes the prevalence and nature of spiritual distress among Indian palliative care patients. Data from 300 adult cancer patients who had completed a questionnaire with 36 spirituality items were analyzed. Spirituality was shaped by the Indian religious and economic context. A latent class analysis resulted in three clusters: trustful patients (46.4 %),…
Origen: Prevalence and Nature of Spiritual Distress Among Palliative Care Patients in India. – PubMed

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The Voice of Surrogate Decision-Makers. Family Responses to Prognostic Information in Chronic Critical Illness.

Related Articles The Voice of Surrogate Decision-Makers. Family Responses to Prognostic Information in Chronic Critical Illness. Am J Respir Crit Care Med. 2017 Oct 01;196(7):864-872 Authors: Nelson JE, Hanson LC, Keller KL, Carson SS, Cox CE, Tulsky JA, White DB, Chai EJ, Weiss SP, Danis M Abstract RATIONALE: Information from clinicians about the expected course of the patient’s illness is relevant and important for decision-making by surrogates for chronically critically ill patients on mechanical ventilation. OBJECTIVES: To observe how surrogates of chronically critically ill patients respond to information about prognosis from palliative care clinicians. METHODS: This was a qualitative analysis…
Origen: The Voice of Surrogate Decision-Makers. Family Responses to Prognostic Information in Chronic Critical Illness. – PubMed

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Palliative Care Considerations for Patients With Head and Neck Cancer With Children at Home.

Related Articles Palliative Care Considerations for Patients With Head and Neck Cancer With Children at Home. Clin J Oncol Nurs. 2016 Dec 01;20(6):585-587 Authors: Hendricks-Ferguson VL, Ott R Abstract Adult patients diagnosed with head and neck cancer (HNC) who may have contact with children in the home setting are at risk of experiencing distress because of embarrassing and challenging oral symptoms often associated with an HNC diagnosis and the side effects of required treatments. This article features a case study involving a patient diagnosed with HNC and details how oncology nurses can provide patients with HNC and their caregivers with…
Origen: Palliative Care Considerations for Patients With Head and Neck Cancer With Children at Home. – PubMed

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The intersection of fetal palliative care and fetal surgery: Addressing mortality and quality of life.

Related Articles The intersection of fetal palliative care and fetal surgery: Addressing mortality and quality of life. Semin Perinatol. 2017 Mar;41(2):101-105 Authors: Munson D Abstract Over the last few decades, the fields of fetal surgery and maternal-fetal medicine have developed interventions aimed at modifying severe diseases in utero. Innovations in fetal approaches to congenital diaphragmatic hernia and myelomeningocele have shown considerable promise in modifying the clinical course with fetal intervention. Patients who present to fetal centers to be evaluated for these interventions face challenging decisions that directly relate to questions of mortality and quality of life. This article explores how…
Origen: The intersection of fetal palliative care and fetal surgery: Addressing mortality and quality of life. – PubMed

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