Supporting infants with severe perinatal diagnoses, their families and healthcare providers: development of a perinatal palliative care program

BMC Palliat Care. 2025 Nov 5;24(1):281. doi: 10.1186/s12904-025-01923-y.ABSTRACTBACKGROUND: Perinatal palliative care (PPC) provides essential support for families and healthcare providers at the end-of-life. Despite clear global need, structured PPC programs are not widely established.AIM: To develop a PPC program that supports families confronted with a severe perinatal diagnosis for their (unborn) child, with a focus on evidence-based development of such program, ensuring care is effective, consistent, and aligned with best practices.METHODS: We systematically designed a PPC program following a 7-step method, using Bleijenberg’s extended Medical Research Council framework. We conducted a qualitative interview study with 22 healthcare providers and 18…
Origen: Supporting infants with severe perinatal diagnoses, their families and healthcare providers: development of a perinatal palliative care program – PubMed