Publicaciones etiquetadas ‘Recursos’

Recursos

Patients' experiences of care and support at home after a family member's participation in an intervention during palliative care.

Related Articles Patients’ experiences of care and support at home after a family member’s participation in an intervention during palliative care. Palliat Support Care. 2017 Jun;15(3):305-312 Authors: Norinder M, Goliath I, Alvariza A Abstract OBJECTIVE: Patients who receive palliative home care are in need of support from family members, who take on great responsibility related to caregiving but who often feel unprepared for this task. Increasing numbers of interventions aimed at supporting family members in palliative care have been described and evaluated. It is not known whether and how these interventions actually affect the care or support provided to a…
Origen: Patients' experiences of care and support at home after a family member's participation in an intervention during palliative care. – PubMed

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Recursos

Assessing the impact of a Carer Support Needs Assessment Tool (CSNAT) intervention in palliative home care: a stepped wedge cluster trial.

Related Articles Assessing the impact of a Carer Support Needs Assessment Tool (CSNAT) intervention in palliative home care: a stepped wedge cluster trial. BMJ Support Palliat Care. 2017 Sep;7(3):326-334 Authors: Grande GE, Austin L, Ewing G, O’Leary N, Roberts C Abstract OBJECTIVES: To test the impact on family carers of a Carer Support Needs Assessment Tool (CSNAT) intervention to facilitate carer-led assessment and support during end of life care. METHOD: Mixed method, part-randomised, stepped wedge cluster trial with 6 palliative home care services comparing carers receiving the intervention with those receiving standard care. Postal survey with carers 4-5 months postbereavement measured…
Origen: Assessing the impact of a Carer Support Needs Assessment Tool (CSNAT) intervention in palliative home care: a stepped wedge cluster trial. – PubMed

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Opinions about the new law on end-of-life issues in a sample of french patients receiving palliative care.

Related Articles Opinions about the new law on end-of-life issues in a sample of french patients receiving palliative care. BMC Palliat Care. 2017 Jan 21;16(1):7 Authors: Boulanger A, Chabal T, Fichaux M, Destandau M, La Piana JM, Auquier P, Baumstarck K, Salas S Abstract BACKGROUND: In February 2nd 2016, the French government enacted the Claeys-Leonetti law that forbade euthanasia and established the right to deep and continuous sedation for end-of-life patients. Moreover, the law also obliges clinicians to abide by any advance directives regarding treatment and investigation, except in cases where they are «obviously inappropriate» in a given medical situation,…
Origen: Opinions about the new law on end-of-life issues in a sample of french patients receiving palliative care. – PubMed

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Recursos

Withdrawal of invasive ventilation in a patient with motor neurone disease and total locked-in syndrome.

Related Articles Withdrawal of invasive ventilation in a patient with motor neurone disease and total locked-in syndrome. Pract Neurol. 2017 Oct;17(5):383-386 Authors: Gleeson A, Johnson F Abstract Withdrawing invasive ventilation from a person with motor neurone disease who lacks the relevant mental capacity raises ethical issues such as the withdrawal of life-sustaining treatment and establishing best interests. There is little available information on providing optimal symptom management to these patients during the withdrawal process. We describe a man with motor neurone disease who also had total locked-in syndrome at the time of ventilation withdrawal, and we document the legal, ethical,…
Origen: Withdrawal of invasive ventilation in a patient with motor neurone disease and total locked-in syndrome. – PubMed

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