Palliat Med. 2022 Sep;36(8):1168-1170. doi: 10.1177/02692163221122261.NO ABSTRACTPMID:36062726 | DOI:10.1177/02692163221122261
Origen: Opportunities for computational tools in palliative care: Supporting patient needs and lowering burden – PubMed

Trials. 2022 Sep 5;23(1):752. doi: 10.1186/s13063-022-06691-1.ABSTRACTBACKGROUND: Recruitment for randomised controlled trials in palliative care can be challenging; disease progression and terminal illness underpin high rates of attrition. Research into participant decision-making in medicinal cannabis randomised controlled trials (RCTs) is very limited. Nesting qualitative sub-studies within RCTs can identify further challenges to participation, informing revisions to study designs and recruitment practices. This paper reports on findings from a qualitative sub-study supporting RCTs of medicinal cannabis for symptom burden relief in patients with advanced cancer in one Australian city.METHODS: Semi-structured qualitative interviews were conducted with 48 patients with advanced cancer, eligible to…
Origen: Using a qualitative sub-study to inform the design and delivery of randomised controlled trials on medicinal cannabis for symptom relief in patients with advanced cancer – PubMed

BMC Palliat Care. 2022 Sep 6;21(1):155. doi: 10.1186/s12904-022-01038-8.ABSTRACTBACKGROUND: The provision of palliative care is increasing, with many people dying in community-based settings. It is essential that communication is effective if and when patients transition from hospice to community palliative care. Past research has indicated that communication issues are prevalent during hospital discharges, but little is known about hospice discharges.METHODS: An explanatory sequential mixed methods study consisting of a retrospective review of hospice discharge letters, followed by hospice focus groups, to explore patterns in communication of palliative care needs of discharged patients and describe why these patients were being discharged. Discharge…
Origen: Communication of palliative care needs in discharge letters from hospice providers to primary care: a multisite sequential explanatory mixed methods study – PubMed

Handb Clin Neurol. 2022;190:175-193. doi: 10.1016/B978-0-323-85029-2.00003-8.ABSTRACTPrognosticating is central to primary palliative care in neurology. Many neurologic diseases carry a high burden of troubling symptoms, and many individuals consider health states due to neurologic disease worse than death. Many patients and families report high levels of need for information at all disease stages, including information about prognosis. There are many barriers to communicating prognosis including prognostic uncertainty, lack of training and experience, fear of destroying hope, and not enough time. Developing the right mindset, tools, and skills can improve one’s ability to formulate and communicate prognosis. Prognosticating is subject to many…
Origen: Prognostication in neurology – PubMed

Handb Clin Neurol. 2022;190:17-31. doi: 10.1016/B978-0-323-85029-2.00008-7.ABSTRACTPalliative care is increasingly becoming an established part of medical care, providing the holistic assessment and management of the person at the center of care-physical, psychological, social, and spiritual. This had originally been primarily provided for people with terminal cancers but in the last 50 years, this care has extended to caring for people with issues throughout disease progression and for all diagnoses, including neurologic diseases. Palliative care in fact is now included within guidelines and standards for many neurologic diseases. Palliative care may be delivered as an approach provided by all health and social…
Origen: Neuropalliative care: Defining an emerging field – PubMed