Related Articles Perspectives on Palliative Care Among Duchenne Muscular Dystrophy Patients and Their Families in Singapore. Ann Acad Med Singap. 2020 Feb;49(2):72-77 Authors: Tapawan SJC, Wang FS, Lee MW, Chua AQ, Lin JB, Han V, Lim MT, Ong HT, Tay SK Abstract INTRODUCTION: With better medical care, patients with Duchenne muscular dystrophy (DMD) now live longer but face more complex medical and social needs. This study described the perceptions of DMD patients and their families of disease-specific palliative care services in Singapore. MATERIALS AND METHODS: A multicentre, cross-sectional study involving DMD patients and their families was carried out. Structured questionnaires…
Origen: Perspectives on Palliative Care Among Duchenne Muscular Dystrophy Patients and Their Families in Singapore. – PubMed

Related Articles Parental experience of hope in pediatric palliative care: Critical reflections on an exemplar of parents of a child with trisomy 18. Nurs Inq. 2020 04;27(2):e12341 Authors: Szabat M Abstract The purpose of this study is to analyze the experience of hope that appears in a parent’s blog presenting everyday life while caring for a child with Trisomy 18 (Edwards syndrome). The author, Rebekah Peterson, began her blog on 17 March 2011 and continues to post information on her son Aaron’s care. The analysis of hope in the blog is carried out using a mixed methodology: initial and focused…
Origen: Parental experience of hope in pediatric palliative care: Critical reflections on an exemplar of parents of a child with trisomy 18. – PubMed

Related Articles Will the US$5 million onasemnogene abeparvosec treatment for spinal muscular atrophy represent ‘value for money’ for the NHS? A rapid inquiry into suggestions that it may be cost-effective. Expert Opin Biol Ther. 2020 07;20(7):823-827 Authors: Connock M, Andronis L, Auguste P, Dussart C, Armoiry X Abstract OBJECTIVES: Nusinersen (Spinraza®, Biogen) and onasemnogene abeparvosec (Zolgensma®, Novartis) are novel gene-based therapies for the orphan disease Spinal Muscular Atrophy. Onasemnogene abeparvosec has been allocated an acquisition cost of up to US$5 million per patient. We undertook a rapid inquiry to evaluate if onasemnogene abeparvosec is likely to be cost-effective for the…
Origen: Will the US million onasemnogene abeparvosec treatment for spinal muscular atrophy represent 'value for money' for the NHS? A rapid inquiry into suggestions that it may be cost-effective. – PubMed

Related Articles Secondary Carina and Lobar Bronchi Stenting in Patients with Advanced Lung Cancer: Is It Worth the Effort? A Clinical Experience. Ann Thorac Cardiovasc Surg. 2020 Dec 20;26(6):320-326 Authors: Marchese R, Poidomani G, Palumbo VD, Lo Nigro C, Caterino U, Lo Monte AI, Cajozzo M Abstract BACKGROUND: The lobar airway stenting remains an endoscopic procedure not well standardized in patients with locally advanced lung cancer disease. The goal of this study was to evaluate technical feasibility, clinical outcome, and complications of different stents in patients with malignant lesions involving lobar bronchi, primary and secondary carina. METHODS: Between November 2008…
Origen: Secondary Carina and Lobar Bronchi Stenting in Patients with Advanced Lung Cancer: Is It Worth the Effort? A Clinical Experience. – PubMed

Related Articles Burnout in Palliative Care Nurses, Prevalence and Risk Factors: A Systematic Review with Meta-Analysis. Int J Environ Res Public Health. 2020 10 21;17(20): Authors: Gómez-Urquiza JL, Albendín-García L, Velando-Soriano A, Ortega-Campos E, Ramírez-Baena L, Membrive-Jiménez MJ, Suleiman-Martos N Abstract Palliative care nurses are exposed to hard situations, death, and duel feelings in their daily practice. These, and other work stressors, can favor burnout development. Thus, it is important to analyze the prevalence and risk factors of burnout in palliative care nurses and estimate its prevalence. A systematic review and meta-analysis was done with quantitative primary studies. n =…
Origen: Burnout in Palliative Care Nurses, Prevalence and Risk Factors: A Systematic Review with Meta-Analysis. – PubMed